Projects

PXE International: For comprehensive information about pseudoxanthoma elasticum (PXE), visit PXE International’s website.

Genetic Alliance offers many tools and resources for newly diagnosed, newborn screening resources for new moms and dads, tools for novice and advanced activists, and a map to Navigate the Ecosystem of Translational Science.

The Platform for Engaging Everyone Responsibly, allows individuals to set dynamic and granular preferences for sharing, privacy, and data access.